Dark Angel Posted November 24, 2010 Share Posted November 24, 2010 ggrrrrrrr... it ruined my weekend (13/14 nov) Too much meds in my blood... god too dizzy to stand up so i had to leave the music vid. filming around midnight And i still hate myself for it and feel bad about it... Link to comment Share on other sites More sharing options...
nico_collard Posted November 25, 2010 Author Share Posted November 25, 2010 Did you get to be part of the filming at all? Link to comment Share on other sites More sharing options...
Dark Angel Posted November 25, 2010 Share Posted November 25, 2010 Did you get to be part of the filming at all? Yeah Link to comment Share on other sites More sharing options...
nico_collard Posted November 26, 2010 Author Share Posted November 26, 2010 Yeah Good stuff! Link to comment Share on other sites More sharing options...
Dark Angel Posted November 26, 2010 Share Posted November 26, 2010 Good stuff! of course... its neo Link to comment Share on other sites More sharing options...
Dark Angel Posted December 13, 2010 Share Posted December 13, 2010 If you could get surgery for your epilepsy... for free... by professional peeps... would you do it knownig that it actually also can make the epilepsy worse (only a very small chance for that)??? Link to comment Share on other sites More sharing options...
nico_collard Posted December 14, 2010 Author Share Posted December 14, 2010 If you could get surgery for your epilepsy... for free... by professional peeps... would you do it knownig that it actually also can make the epilepsy worse (only a very small chance for that)??? I don't know... I guess it depends on a few things: 1. How long would you have to stay in hospital afterwards? 2. How quickly would you see an inprovement? 3. Do they know how much better it would make the epilepsy (I mean, would it make only a little bit of difference or would it stop a lot of seizures from happening)? 4. Are you really that desperate to put yourself into surgery to improve the epilepsy? Also I think you have to keep in mind that there is a risk with all surgeries... It just depends on how big the risk is. If it's less than 10% then it may be worth trying... You're obviously considering whether to go through with it then... Link to comment Share on other sites More sharing options...
Dark Angel Posted December 14, 2010 Share Posted December 14, 2010 I don't know... I guess it depends on a few things: 1. How long would you have to stay in hospital afterwards? 2. How quickly would you see an inprovement? 3. Do they know how much better it would make the epilepsy (I mean, would it make only a little bit of difference or would it stop a lot of seizures from happening)? 4. Are you really that desperate to put yourself into surgery to improve the epilepsy? Also I think you have to keep in mind that there is a risk with all surgeries... It just depends on how big the risk is. If it's less than 10% then it may be worth trying... You're obviously considering whether to go through with it then... the risk of it getting worse with suegery is 2 or 5% 1. wonder that too cos i dont wanna stay long... 2. they told me the changes would happen from day to day basiclly only have to adust the meds... not take it from the person from 1 day to another cos thats dangerous 3. They can remove it with surgery... but also only give you less seizures with "drug" that lil part that gives the seizures. Something with they will do testst to see exactly what part of the brain that sends out the electric thingies that gives you a seizure. EFG, CT, EEG ect. 4. Me = nope... i dont wanna take the risk. Only around 2-5 BUT nope. I just ave to live with im "doomed" when it comes to work and get an education! I have photosensative epilepsy... will it then effect the way i see things (with my eyes of course)? Link to comment Share on other sites More sharing options...
nico_collard Posted December 15, 2010 Author Share Posted December 15, 2010 the risk of it getting worse with suegery is 2 or 5% 1. wonder that too cos i dont wanna stay long... 2. they told me the changes would happen from day to day basiclly only have to adust the meds... not take it from the person from 1 day to another cos thats dangerous 3. They can remove it with surgery... but also only give you less seizures with "drug" that lil part that gives the seizures. Something with they will do testst to see exactly what part of the brain that sends out the electric thingies that gives you a seizure. EFG, CT, EEG ect. 4. Me = nope... i dont wanna take the risk. Only around 2-5 BUT nope. I just ave to live with im "doomed" when it comes to work and get an education! I have photosensative epilepsy... will it then effect the way i see things (with my eyes of course)? Hmmmm... It's completely up to you, considering you have to go through with it. If you can, maybe you should ask the doctors about some of the stuff I mentioned and what alternatives there are. I figure if there's some sort of medication alternative then maybe that's the way to go... I wouldn't imagine it would affect your sight, but then again I'm not a doctor, so I had a blood test on Friday last week to test liver function, levels of tegretol and and some other stuff. I ended up getting a message from the doctors yesterday cause The General Practitioner (the one that gave me the referral to the neurologist) wants to talk to me about my test results. So yeah, doctor's appointment before the one in January () Link to comment Share on other sites More sharing options...
Dark Angel Posted December 15, 2010 Share Posted December 15, 2010 Hmmmm... It's completely up to you, considering you have to go through with it. If you can, maybe you should ask the doctors about some of the stuff I mentioned and what alternatives there are. I figure if there's some sort of medication alternative then maybe that's the way to go... I wouldn't imagine it would affect your sight, but then again I'm not a doctor, so I had a blood test on Friday last week to test liver function, levels of tegretol and and some other stuff. I ended up getting a message from the doctors yesterday cause The General Practitioner (the one that gave me the referral to the neurologist) wants to talk to me about my test results. So yeah, doctor's appointment before the one in January () uuhhh.... best of luck with that!!!!! Considered to call and ask em about what its more direct about? Link to comment Share on other sites More sharing options...
nico_collard Posted December 17, 2010 Author Share Posted December 17, 2010 uuhhh.... best of luck with that!!!!! Considered to call and ask em about what its more direct about? They wouldn't tell me... Though I've already gone and they told me what the problem was... my tegretol levels were fine, but my levels of vitamin D were very low, so the doctor told me to get some vitamin D tablets and take them for a few months (apparently a deficiency in vitamin D can be caused by the medication, as well as diet and not enough sunlight)... he also checked out this spot on my face and he thinks it's a cyst. He wasn't going to be too worried about it except it was red so he gave me some antibiotics.. So now I'm taking 3 different pills at breakfast, 1 at lunch and two at dinner... Link to comment Share on other sites More sharing options...
Dark Angel Posted December 17, 2010 Share Posted December 17, 2010 They wouldn't tell me... Though I've already gone and they told me what the problem was... my tegretol levels were fine, but my levels of vitamin D were very low, so the doctor told me to get some vitamin D tablets and take them for a few months (apparently a deficiency in vitamin D can be caused by the medication, as well as diet and not enough sunlight)... he also checked out this spot on my face and he thinks it's a cyst. He wasn't going to be too worried about it except it was red so he gave me some antibiotics.. So now I'm taking 3 different pills at breakfast, 1 at lunch and two at dinner... aawwww im sorry to hear that so you are alost takeing as much as me 2 diffrent (4 in total) @ 7 am and @ 7 pm and 1 before bed... thats 9 in 1 day only cos of that Have been worse... Link to comment Share on other sites More sharing options...
nico_collard Posted December 18, 2010 Author Share Posted December 18, 2010 aawwww im sorry to hear that so you are alost takeing as much as me 2 diffrent (4 in total) @ 7 am and @ 7 pm and 1 before bed... thats 9 in 1 day only cos of that Have been worse... Almost... I'll have to take the vitamin D ones for a couple of months, and the antibiotics for a few weeks, so it's not long at all... luckily! Link to comment Share on other sites More sharing options...
Dark Angel Posted December 18, 2010 Share Posted December 18, 2010 Almost... I'll have to take the vitamin D ones for a couple of months, and the antibiotics for a few weeks, so it's not long at all... luckily! I use to take vitamins... but havent for a weeks time and look where i am now... sick! Time for the tea Neo gave me. I still have a tiny bit let but that was more for the memories. Some grape ginger c-vitamin tea Link to comment Share on other sites More sharing options...
nico_collard Posted December 19, 2010 Author Share Posted December 19, 2010 I use to take vitamins... but havent for a weeks time and look where i am now... sick! Time for the tea Neo gave me. I still have a tiny bit let but that was more for the memories. Some grape ginger c-vitamin tea I've never been one to take vitamins (or drink tea ) but seeing as I have to now take vitamins, maybe i could take up tea drinking... What does that stuff taste like? I've never tried that sort of stuff before,any time I've had tea (which isn't often) it's been black tea... Link to comment Share on other sites More sharing options...
Dark Angel Posted December 19, 2010 Share Posted December 19, 2010 I've never been one to take vitamins (or drink tea ) but seeing as I have to now take vitamins, maybe i could take up tea drinking... What does that stuff taste like? I've never tried that sort of stuff before,any time I've had tea (which isn't often) it's been black tea... depends on what kinda tea you choose... all of em doesnt taste the same The one Neo bought me when i meet up with him in Stockholm is a lil bitter but tastes good and makes your throat feel... smooth? cant describe the feeling... Link to comment Share on other sites More sharing options...
nico_collard Posted December 20, 2010 Author Share Posted December 20, 2010 depends on what kinda tea you choose... all of em doesnt taste the same The one Neo bought me when i meet up with him in Stockholm is a lil bitter but tastes good and makes your throat feel... smooth? cant describe the feeling... That makes sense... Link to comment Share on other sites More sharing options...
Dark Angel Posted December 20, 2010 Share Posted December 20, 2010 That makes sense... goodie had 3 myoclonic seizures last night Link to comment Share on other sites More sharing options...
nico_collard Posted December 21, 2010 Author Share Posted December 21, 2010 goodie had 3 myoclonic seizures last night I hope you're taking good care of yourself... Link to comment Share on other sites More sharing options...
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