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The "I Hate Epilepsy" Club!


nico_collard

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Oh no hunni .. feeling better? Was starting to worry since I hadnt heard from you on here ... I saw my neurologist on Tuesday.. She's going to look into changing my meds in 3 months time (been not sleeping at all again) :aah:

 

how many times have you changed meds now? :blink:

And nope not feeling better. My lip is still huge and my body hurts more...

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Oh no hunni .. feeling better? Was starting to worry since I hadnt heard from you on here ... I saw my neurologist on Tuesday.. She's going to look into changing my meds in 3 months time (been not sleeping at all again) :aah:

 

Oooooh, that's not good... but why in 3 months time?

 

It hurts like hell and damn its hard to walk!!!!!!!

 

:sad::huglove:

 

They must've been really bad ones then, especially since you had to have oxygen...

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I certainly wouldn't wish to be hospitalised for it! It was bad enough last time!

 

OMG! I love your i has a time lord siggie pic.

 

My step dad has epilepsy, and he once had a seizure near a fire place, and sparks from the fire flew onto his face. then we he came around again, he woke up and half of his face was burnt. It was awful. I almost wrote awesome then. haha

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OMG! I love your i has a time lord siggie pic.

 

My step dad has epilepsy, and he once had a seizure near a fire place, and sparks from the fire flew onto his face. then we he came around again, he woke up and half of his face was burnt. It was awful. I almost wrote awesome then. haha

 

Thank you! I found it on LiveJournal I think... I find a lot of mine on there, people have th emost awesome ones on there!

 

 

Oooooh, that's not good! Did he end up with scars from it?

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OMG! I love your i has a time lord siggie pic.

 

My step dad has epilepsy, and he once had a seizure near a fire place, and sparks from the fire flew onto his face. then we he came around again, he woke up and half of his face was burnt. It was awful. I almost wrote awesome then. haha

 

OMG thats terrible!

im glad that never happened when i had a fireplace :shocked:

GOD i hope i wont have a seizure tomorrow :aah:

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OMG thats terrible!

im glad that never happened when i had a fireplace :shocked:

GOD i hope i wont have a seizure tomorrow :aah:

 

Anything happening tomorrow, or is it just a general "I hope i don't have a seizure tomorrow" thing?

 

 

My mother thought it would be a good idea to remind me last friday that it was a year since I started having the headaches from the strokes... as if I didn't already remember that I had 2 strokes almost a year ago :sneaky2:

 

Anyways, gotta go to bed...

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Thank you! I found it on LiveJournal I think... I find a lot of mine on there, people have th emost awesome ones on there!

 

 

Oooooh, that's not good! Did he end up with scars from it?

 

He has a feew

 

OMG thats terrible!

im glad that never happened when i had a fireplace :shocked:

GOD i hope i wont have a seizure tomorrow :aah:

 

Yeh, must be horrible

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Hi !! I don't have epilepsy, I just wanted to stop by and recommend a movie for you. It's about a guy who plans the perfect crime and suffers from epilepsy.

It's called 'El Aura' *I think it's 'The Aura' in English*. It's Argentinean and it won a lot of awards.:bleh:.

It's a great movie.

 

Here's the link to IMDB. You can find the movie's title in your country and know more about it.

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Anything happening tomorrow, or is it just a general "I hope i don't have a seizure tomorrow" thing?

 

 

My mother thought it would be a good idea to remind me last friday that it was a year since I started having the headaches from the strokes... as if I didn't already remember that I had 2 strokes almost a year ago :sneaky2:

 

Anyways, gotta go to bed...

 

Im going to a Guns N Roses show wkere im on one of the members guestlist (a member i know... not something i won) and im going to meet him too.... meet and see live after wanted that for 12+ years... so it will be V ERYT bad timeing to get one tomorrow. GnR do use a lot of flashlight but i just ahve to hope i will be front... :aah:

the epo. hospital have givin me permission to take xtra meds. tomorrow... 200 mg. xtra lamictal in the morning and evening and 500 mg xtra keppra morning and evening too...

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Oooooh, that's not good... but why in 3 months time?

 

The doctors think I need more time for the doses to kick in .. and more blood tests .. :aah::sneaky2:

 

how many times have you changed meds now? :blink:

And nope not feeling better. My lip is still huge and my body hurts more...

 

I've changed my meds way too many times to remember...

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Hi !! I don't have epilepsy, I just wanted to stop by and recommend a movie for you. It's about a guy who plans the perfect crime and suffers from epilepsy.

It's called 'El Aura' *I think it's 'The Aura' in English*. It's Argentinean and it won a lot of awards.:bleh:.

It's a great movie.

 

Here's the link to IMDB. You can find the movie's title in your country and know more about it.

 

Hmmmm, interesting.. will have to check it out...

 

Im going to a Guns N Roses show wkere im on one of the members guestlist (a member i know... not something i won) and im going to meet him too.... meet and see live after wanted that for 12+ years... so it will be V ERYT bad timeing to get one tomorrow. GnR do use a lot of flashlight but i just ahve to hope i will be front... :aah:

the epo. hospital have givin me permission to take xtra meds. tomorrow... 200 mg. xtra lamictal in the morning and evening and 500 mg xtra keppra morning and evening too...

 

Ooooh, I read about that! Good luck, and i hope all goes well!

 

The doctors think I need more time for the doses to kick in .. and more blood tests .. :aah::sneaky2:

 

Oooooh, bugger! I was gonna say they didn't do all that stuff with me, but they only changed it once, and that was cause I had an allergic reaction to phenytoin... :blink:

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Oooooh, bugger! I was gonna say they didn't do all that stuff with me, but they only changed it once, and that was cause I had an allergic reaction to phenytoin... :blink:

 

Well I'm hoping you havent had anymore allergic reactions now..

 

Hi !! I don't have epilepsy, I just wanted to stop by and recommend a movie for you. It's about a guy who plans the perfect crime and suffers from epilepsy.

It's called 'El Aura' *I think it's 'The Aura' in English*. It's Argentinean and it won a lot of awards.:bleh:.

It's a great movie.

 

Here's the link to IMDB. You can find the movie's title in your country and know more about it.

 

There is another epilepsy based movie I brought over ebay but it was shown in the USA on tv .. it's called "First Do No Harm" http://en.wikipedia.org/wiki/...First_Do_No_Harm

 

My mother thought it would be a good idea to remind me last friday that it was a year since I started having the headaches from the strokes... as if I didn't already remember that I had 2 strokes almost a year ago :sneaky2:

 

ugh .. I hate when mothers do that ... my mum liked to remind me of when I went into hospital as a baby with meningitis :sneaky2: ... lucky I was a baby and didnt remember it ... :blink:

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Well I'm hoping you havent had anymore allergic reactions now..

 

 

 

There is another epilepsy based movie I brought over ebay but it was shown in the USA on tv .. it's called "First Do No Harm" http://en.wikipedia.org/wiki/...First_Do_No_Harm

 

 

 

ugh .. I hate when mothers do that ... my mum liked to remind me of when I went into hospital as a baby with meningitis :sneaky2: ... lucky I was a baby and didnt remember it ... :blink:

 

Nah, they put me on tegretol cause it doesn't tend to cause allergic reactions or smth...

 

 

:blink: Weird how parents do that... no doubt mum will get all weird when it's the 28th, cause that's when they found the blood clots...

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Nah, they put me on tegretol cause it doesn't tend to cause allergic reactions or smth...

 

 

:blink: Weird how parents do that... no doubt mum will get all weird when it's the 28th, cause that's when they found the blood clots...

 

I think its more counting your lucky stars you're still here ... found out my next appointment for my specialist is in september .. :shocked:

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I think its more counting your lucky stars you're still here ... found out my next appointment for my specialist is in september .. :shocked:

 

Very true...

 

 

Wow, I thought you woulda gotten one sooner... and speaking of doctor's appointments, I have one in July...

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electric shocks commin thoruh :sneaky2:

cant sleep cos of em and dead tired... freakin hate it. If it was electric shockc... wauw no need for "volume" hair thingys :lmfao:

 

Ooooh bugger!

 

Hope you're okay.

 

 

*slaps hand* Forgot meds again! :doh:

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Forgot meds. AGAIN? :sneaky2: take it... NOW!!!!!!!!!!!!!!!!!!!!!!

 

I can't... my meds are at home and I'm about 1/2 hour away and at work! :tears:

 

 

Weirdly enough, I remembered yesterday and the day before.

 

 

Right, when I get home I'm going to move my meds so I can see them more easily and I'm gonna pack some in my bag...

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I can't... my meds are at home and I'm about 1/2 hour away and at work! :tears:

 

 

Weirdly enough, I remembered yesterday and the day before.

 

 

Right, when I get home I'm going to move my meds so I can see them more easily and I'm gonna pack some in my bag...

 

good girl. how often do you forget to take it? :blink:

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