nico_collard Posted April 29, 2010 Author Share Posted April 29, 2010 cant... insomnia... But think i will mention it to my doc. when im going to see one of em today. They want me back on something called Tramadol (Tramadol is a synthetic stripped-down piperidine-analog of the phenantherane alkaloid codeine and, as such, is an opioid and also a prodrug codeine is metabolized to morphine) and Valium ("is a benzodiazepine derivative drug. It is commonly used for treating anxiety, insomnia, seizures, muscle spasms, restless legs syndrome, obsessive compulsive disorder) I hope they dont want me to take em together again! tramadol... I think mum had it at one stage because of her hip Hmmmmm.... did the doctor put you on both tramadol and valium? I think my writing will be a lil "off" later tonight cos i got new meds. That's okay, I've notice my writing has been a bit weird after starting back on tegretol... Ooooh, guess what? I went to see a doctor tonight and he told me that I can come off warfarin! I'm not allowed to take any contraceptive pills though cause it raises the risk (like 35x more likely) of having another clot... Link to comment Share on other sites More sharing options...
Dark Angel Posted April 29, 2010 Share Posted April 29, 2010 tramadol... I think mum had it at one stage because of her hip Hmmmmm.... did the doctor put you on both tramadol and valium? That's okay, I've notice my writing has been a bit weird after starting back on tegretol... Ooooh, guess what? I went to see a doctor tonight and he told me that I can come off warfarin! I'm not allowed to take any contraceptive pills though cause it raises the risk (like 35x more likely) of having another clot... Only tramadol... thank god! Both at the same time and i will be here for 2 hours writing almost like the tweet Mika did when he was on "something" that could help him sleep... and then sleep for 22 hours Both of em makes you very tired! and congratz with you can stop with that! Thats great Link to comment Share on other sites More sharing options...
nico_collard Posted April 30, 2010 Author Share Posted April 30, 2010 Only tramadol... thank god! Both at the same time and i will be here for 2 hours writing almost like the tweet Mika did when he was on "something" that could help him sleep... and then sleep for 22 hours Both of em makes you very tired! and congratz with you can stop with that! Thats great That's lucky you're only on one! And thankies! Link to comment Share on other sites More sharing options...
Dark Angel Posted April 30, 2010 Share Posted April 30, 2010 That's lucky you're only on one! And thankies! dont ever wish to get on em unless you wanna sleep all day... i forgot how tired they can make you... theres also a warning on the pack that not allowed to drive or handle dangerous things when on em Link to comment Share on other sites More sharing options...
giggels Posted April 30, 2010 Share Posted April 30, 2010 i dont offtern hate but i hate theat my dad blew up over the livingroom bin(i fogit ot empty it)and he blew a feuse he threw it at the kichen door and i was right behined it (so bin hit door dooor hit my head bust nose and blood on door and tiseus up nose) i need a hug Link to comment Share on other sites More sharing options...
Dark Angel Posted May 1, 2010 Share Posted May 1, 2010 wish there were someone else here w. photosensative epilepsy who maybe could explain this a lil better.. tried to explain what can effect photosensative epilespy ect. http://www.mikafanclub.com/forums/showpost.php?p=2957300&postcount=2761 makes me think of the GnR show im going to... first of all Carla/Wonka: i will call you before and after if ok? if you want to.. in case of worry? Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 2, 2010 Share Posted May 2, 2010 i dont offtern hate but i hate theat my dad blew up over the livingroom bin(i fogit ot empty it)and he blew a feuse he threw it at the kichen door and i was right behined it (so bin hit door dooor hit my head bust nose and blood on door and tiseus up nose) i need a hug *huggles* everything ok... Link to comment Share on other sites More sharing options...
Dark Angel Posted May 2, 2010 Share Posted May 2, 2010 i dont offtern hate but i hate theat my dad blew up over the livingroom bin(i fogit ot empty it)and he blew a feuse he threw it at the kichen door and i was right behined it (so bin hit door dooor hit my head bust nose and blood on door and tiseus up nose) i need a hug so sorry to hear that But sorry i cant find the connection between that and epilepsy... Link to comment Share on other sites More sharing options...
nico_collard Posted May 2, 2010 Author Share Posted May 2, 2010 wish there were someone else here w. photosensative epilepsy who maybe could explain this a lil better.. tried to explain what can effect photosensative epilespy ect. http://www.mikafanclub.com/forums/showpost.php?p=2957300&postcount=2761 makes me think of the GnR show im going to... first of all Carla/Wonka: i will call you before and after if ok? if you want to.. in case of worry? That made sense to me Link to comment Share on other sites More sharing options...
Dark Angel Posted May 2, 2010 Share Posted May 2, 2010 dealing w. myoclonic jerks atm. and they hurt! Petit's earlier today... Link to comment Share on other sites More sharing options...
nico_collard Posted May 3, 2010 Author Share Posted May 3, 2010 dealing w. myoclonic jerks atm. and they hurt! Petit's earlier today... :huglove: Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 4, 2010 Share Posted May 4, 2010 dealing w. myoclonic jerks atm. and they hurt! Petit's earlier today... Same thing happened to me and I had some generalised ones over the weekend at my mum's.. spent most of sunday in bed with my pug keeping me company .. he knows when my seizures are about to happen like seizure dogs.. but he isnt trained which is baffling .. here's a link for more seizure dog info: http://www.epilepsyfoundation.org/epilepsyusa/seizuredogs.cfm Link to comment Share on other sites More sharing options...
crazyaboutmika Posted May 4, 2010 Share Posted May 4, 2010 I hope a better treatment is available for you guys as I'm reading this thread and it seems although you all take lots of expensive meds with lots of side effects , they don't seem to prevent you from having bad times! Link to comment Share on other sites More sharing options...
Dark Angel Posted May 4, 2010 Share Posted May 4, 2010 Same thing happened to me and I had some generalised ones over the weekend at my mum's.. spent most of sunday in bed with my pug keeping me company .. he knows when my seizures are about to happen like seizure dogs.. but he isnt trained which is baffling .. here's a link for more seizure dog info: http://www.epilepsyfoundation.org/epilepsyusa/seizuredogs.cfm Lucky you have someone to look after you! I guess i should have staied in bed too but desided not to.... that kinda normal... I would have get kicked to bed if my mum or lil sis was around and there was some on here that use to kick me to bed too I kow about the seizure dogs. There have been some talking about that i should have one and a secure apartment where there will come a nurse to check up on me each day and theres always someone i can call if i need help asap. Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 5, 2010 Share Posted May 5, 2010 Lucky you have someone to look after you!I guess i should have staied in bed too but desided not to.... that kinda normal... I would have get kicked to bed if my mum or lil sis was around and there was some on here that use to kick me to bed too I kow about the seizure dogs. There have been some talking about that i should have one and a secure apartment where there will come a nurse to check up on me each day and theres always someone i can call if i need help asap. It was a long weekend where I am in Australia so I was at Mum's. Usually I'm home by myself in the morning when my bf is at work .. so have to keep myself amused while he's out ... Link to comment Share on other sites More sharing options...
nico_collard Posted May 5, 2010 Author Share Posted May 5, 2010 Same thing happened to me and I had some generalised ones over the weekend at my mum's.. spent most of sunday in bed with my pug keeping me company .. he knows when my seizures are about to happen like seizure dogs.. but he isnt trained which is baffling .. here's a link for more seizure dog info: http://www.epilepsyfoundation.org/epilepsyusa/seizuredogs.cfm Did you mention something about that in the Aussie thread? Awww, what a clever dog! I hope a better treatment is available for you guys as I'm reading this thread and it seems although you all take lots of expensive meds with lots of side effects , they don't seem to prevent you from having bad times! I don't have much to complain about, my seizures are controlled (except for the occasional twitch)... I hope things get better for Angel and Ally though... Lucky you have someone to look after you!I guess i should have staied in bed too but desided not to.... that kinda normal... I would have get kicked to bed if my mum or lil sis was around and there was some on here that use to kick me to bed too I kow about the seizure dogs. There have been some talking about that i should have one and a secure apartment where there will come a nurse to check up on me each day and theres always someone i can call if i need help asap. Sounds like a smart idea actually... how do you feel about having someone checking up on you every day? Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 5, 2010 Share Posted May 5, 2010 Did you mention something about that in the Aussie thread? Awww, what a clever dog! I don't have much to complain about, my seizures are controlled (except for the occasional twitch)... I hope things get better for Angel and Ally though... Thanksies for the ... my Boris is a smart puggie ... Not sure if I mentioned it in the Aussie thread... Link to comment Share on other sites More sharing options...
nico_collard Posted May 5, 2010 Author Share Posted May 5, 2010 Thanksies for the ... my Boris is a smart puggie ... Not sure if I mentioned it in the Aussie thread... Ooooh, okay then... and Boris is such a cute name for a pug, but it does suit them... You know, everytime I see a pug on I Can Has Hotdog, I think of you! Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 6, 2010 Share Posted May 6, 2010 Ooooh, okay then... and Boris is such a cute name for a pug, but it does suit them... You know, everytime I see a pug on I Can Has Hotdog, I think of you! hehehehe pugs rule!!! I want to get another one when I get a place where I can have a pet Link to comment Share on other sites More sharing options...
nico_collard Posted May 6, 2010 Author Share Posted May 6, 2010 hehehehe pugs rule!!! I want to get another one when I get a place where I can have a pet Nice! What will you name the next one? Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 6, 2010 Share Posted May 6, 2010 Nice! What will you name the next one? Probably Mika Link to comment Share on other sites More sharing options...
nico_collard Posted May 6, 2010 Author Share Posted May 6, 2010 Nice! Link to comment Share on other sites More sharing options...
Dark Angel Posted May 6, 2010 Share Posted May 6, 2010 Probably Mika thats what my fam. calls my dog and that ive notised ive called him a few times too... Link to comment Share on other sites More sharing options...
Dark Angel Posted May 6, 2010 Share Posted May 6, 2010 almost got strangled by my meds this morning cos i was watching something w. Mika that made me laugh while i was takeing my meds ... and worst of all... its was the Lamictal and its tasts like... cant find a word how bad it tasts Link to comment Share on other sites More sharing options...
demonkissangel69 Posted May 7, 2010 Share Posted May 7, 2010 I hope a better treatment is available for you guys as I'm reading this thread and it seems although you all take lots of expensive meds with lots of side effects , they don't seem to prevent you from having bad times! Some days are good and some arent ... most days my meds make me drowsy.. almost got strangled by my meds this morning cos i was watching something w. Mika that made me laugh while i was takeing my meds ... and worst of all... its was the Lamictal and its tasts like... cant find a word how bad it tasts I know the Lamictal feeling and never take it with water .. the worst feeling of all ... Link to comment Share on other sites More sharing options...
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