Dark Angel Posted November 6, 2010 Author Share Posted November 6, 2010 bored... big time! Link to comment Share on other sites More sharing options...
Droopsy Posted November 6, 2010 Share Posted November 6, 2010 Happy Link to comment Share on other sites More sharing options...
crazyaboutmika Posted November 6, 2010 Share Posted November 6, 2010 bored... big time! We're all hibernating I guess! We need a new Mika gig so we feel happy! Soon to come! I would love him to sing with Scissor Sisters! Link to comment Share on other sites More sharing options...
mikalollipop_karla Posted November 6, 2010 Share Posted November 6, 2010 Tiiiiiiiiireeeeeeeeedddddddd Link to comment Share on other sites More sharing options...
Dark Angel Posted November 6, 2010 Author Share Posted November 6, 2010 (edited) nervous... as hell Just opened up to a friend... hope it wont ruin our friendship... Edited November 6, 2010 by Dark Angel Link to comment Share on other sites More sharing options...
MissPie Posted November 6, 2010 Share Posted November 6, 2010 Embarrassed! Link to comment Share on other sites More sharing options...
Droopsy Posted November 7, 2010 Share Posted November 7, 2010 *Back hurts* Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 thirsty and still nervous... Link to comment Share on other sites More sharing options...
nico_collard Posted November 7, 2010 Share Posted November 7, 2010 All day I've felt exhausted. This morning I woke up and all the muscles on the right side of my chest were twitching, my arm dropped to my side and my leg was feeling weird. I ended up getting teary cause I thought I was going to have a seizure. Luckily it stopped pretty quickly and I started to feel better. Then I played with the pipe band at a country fair cause the governor of NSW was coming. Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 All day I've felt exhausted. This morning I woke up and all the muscles on the right side of my chest were twitching, my arm dropped to my side and my leg was feeling weird. I ended up getting teary cause I thought I was going to have a seizure. Luckily it stopped pretty quickly and I started to feel better. Then I played with the pipe band at a country fair cause the governor of NSW was coming. Myoclonic Seizures These are brief but significant muscle jerks which usually involve the upper body but can involve the lower or whole body. The person may drop or spill what they are holding or fall off a chair. There is no impairment of consciousness, but if several seizures occur over a short period of time the person may feel slightly confused or drowsy. These seizures frequently occur shortly after awakening. I get em a few times a week... I have to take valium before i go to bed cos of em Nothing "big" just damn annoying! Glad you are better Link to comment Share on other sites More sharing options...
marian538 Posted November 7, 2010 Share Posted November 7, 2010 but fine Link to comment Share on other sites More sharing options...
ilseh1983 Posted November 7, 2010 Share Posted November 7, 2010 very happy, did manage to record the EMA hotlist with Mika after all, after giving up hope :biggrin2: Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 but fine tired too... but i HAVE to stay awake... Link to comment Share on other sites More sharing options...
marian538 Posted November 7, 2010 Share Posted November 7, 2010 tired too... but i HAVE to stay awake... me too Link to comment Share on other sites More sharing options...
nico_collard Posted November 7, 2010 Share Posted November 7, 2010 Myoclonic SeizuresThese are brief but significant muscle jerks which usually involve the upper body but can involve the lower or whole body. The person may drop or spill what they are holding or fall off a chair. There is no impairment of consciousness, but if several seizures occur over a short period of time the person may feel slightly confused or drowsy. These seizures frequently occur shortly after awakening. I get em a few times a week... I have to take valium before i go to bed cos of em Nothing "big" just damn annoying! Glad you are better Thanks hun... it really freaked me out, cause the last time I had it like that I was in a meeting at school and my leg started to spasm. Not only that, it felt similar to the first seizure I had in hospital.... I think I might speak with the neurologist about it when I see him in January... Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 (edited) Thanks hun... it really freaked me out, cause the last time I had it like that I was in a meeting at school and my leg started to spasm. Not only that, it felt similar to the first seizure I had in hospital.... I think I might speak with the neurologist about it when I see him in January... Might be a pretty good idea maybe you need some new meds. or change the dose you get now... wanna do anything to get better right? Even if it means to start some new xtra meds. or higher dose? Im going to see my new doc. at the epilepsy hospital in Feb... the chief doc. there Edited November 7, 2010 by Dark Angel Link to comment Share on other sites More sharing options...
nico_collard Posted November 7, 2010 Share Posted November 7, 2010 Might be a pretty good idea maybe you need some new meds. or change the dose you get now... wanna do anything to get better right? Even if it means to start some new xtra meds. or higher dose? Im going to see my new doc. at the epilepsy hospital in Feb... the chief doc. there I'm getting a blood test soon to measure the levels of tegretol in my system (along with a liver function test and other tests - I can't read his writing so I can't be sure) so the doc might adjust it then... If I have to change meds or take more then so be it. It really doesn't bother me... Ooooh, chief doctor... impressive. Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 (edited) I'm getting a blood test soon to measure the levels of tegretol in my system (along with a liver function test and other tests - I can't read his writing so I can't be sure) so the doc might adjust it then... If I have to change meds or take more then so be it. It really doesn't bother me... Ooooh, chief doctor... impressive. how often do they test you? (the blood thingy) i need a new test each 3rd month But things are getting better and better... have the past 6 month time. Less seizures, the meds level in my blood looks better. Keppra is perfect Lamictal is a lil low... im only waiting for a phonecall for em to find out my new dose... but its better than it use to be They think its cos ive been so happy the past 6 month time I have to go through some new tests too... but that about what kinda epilepsy i have cos they dont think im photosensative Really doesnt bother me too... all i want is to get better cos it suuuuucks to have it. I just DONT wanna get hospitalised again... but they are trying hard to make me say ok I hope your test results wont be bad And i hope your doc. wont put you on valium... can "destroy" your day... donno why i ahve the chief doc. now i have 2 docs. there now... Edited November 7, 2010 by Dark Angel Link to comment Share on other sites More sharing options...
nico_collard Posted November 7, 2010 Share Posted November 7, 2010 how often do they test you? (the blood thingy)i need a new test each 3rd month But things are getting better and better... have the past 6 month time. Less seizures, the meds level in my blood looks better. Keppra is perfect Lamictal is a lil low... im only waiting for a phonecall for em to find out my new dose... but its better than it use to be They think its cos ive been so happy the past 6 month time I have to go through some new tests too... but that about what kinda epilepsy i have cos they dont think im photosensative Really doesnt bother me too... all i want is to get better cos it suuuuucks to have it. I just DONT wanna get hospitalised again... but they are trying hard to make me say ok I hope your test results wont be bad And i hope your doc. wont put you on valium... can "destroy" your day... donno why i ahve the chief doc. now i have 2 docs. there now... I got tested after I got out of rehabilitation, so about 14 months ago. I think they thought I wasn't going to have any more seizures so they didn't bother changing dosages, and the only reason they changed from Dilantin to Tegretol cause I was allergic to it... I'm not too concerned about the test results, I'm sure everything is okay If you have 2 doctors, then they can work harder to get your seizures under control... I had two doctors in Sydney, and they were great... Anyways, I better get to bed... Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 I got tested after I got out of rehabilitation, so about 14 months ago. I think they thought I wasn't going to have any more seizures so they didn't bother changing dosages, and the only reason they changed from Dilantin to Tegretol cause I was allergic to it... I'm not too concerned about the test results, I'm sure everything is okay If you have 2 doctors, then they can work harder to get your seizures under control... I had two doctors in Sydney, and they were great... Anyways, I better get to bed... 14 months... holy cow Im always concerned about the results... i werent in the beginning but changed cos they were keep on changing my dose and give me new meds. HAD 2 docs? Only 1 now cos they thought everything was fine? sweet dreams and talk to you soonish Link to comment Share on other sites More sharing options...
Dark Angel Posted November 7, 2010 Author Share Posted November 7, 2010 hyper Link to comment Share on other sites More sharing options...
roxy Posted November 7, 2010 Share Posted November 7, 2010 Better. Link to comment Share on other sites More sharing options...
mary* Posted November 7, 2010 Share Posted November 7, 2010 I dont know tomorrow is school sooo.... Link to comment Share on other sites More sharing options...
roxy Posted November 7, 2010 Share Posted November 7, 2010 I dont knowtomorrow is school sooo.... I have the week off... HAHAHAHAHAHAHA Link to comment Share on other sites More sharing options...
mary* Posted November 7, 2010 Share Posted November 7, 2010 I have the week off... HAHAHAHAHAHAHA you are lucky:aah: but tomorrow I have 'good' lessons:aah: Link to comment Share on other sites More sharing options...
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